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  • ruby4's Avatar
    Yesterday, 10:50 PM
    Be physically active and make sure that your calories per day is between 1000 - 1200.
    2 replies | 601 view(s)
  • ruby4's Avatar
    Yesterday, 10:47 PM
    I use coconut oil to make my hair longer and thicker.
    49 replies | 7920 view(s)
  • Jshet22's Avatar
    Yesterday, 06:00 PM
    Jshet22 replied to a thread Tobi in Adults
    That's exactly what I was thinking now Ratatosk. He will definetly like the extra video game time.
    8 replies | 378 view(s)
  • Rach3ica's Avatar
    Yesterday, 05:17 PM
    Hello, When she was little she had alot of Bronchiolitis and Pneumonia at 2years old. When she started Kindy at 4years old, she was constantly sick...
    8 replies | 2409 view(s)
  • Ratatosk's Avatar
    Yesterday, 10:04 AM
    Ratatosk replied to a thread Tobi in Adults
    DS has been on Tobi off and on since he was 2 or 3 months old and cultured pseudo. Cultured if off and on over the years, usually no symptoms. The...
    8 replies | 378 view(s)
  • Jshet22's Avatar
    Yesterday, 09:16 AM
    Jshet22 replied to a thread Tobi in Adults
    15 minutes isn't too bad. I'm sure he can handle it after he gets use to it. The hard part will actually be the 28 day on/off routine for him I'm...
    8 replies | 378 view(s)
  • Jreed1101's Avatar
    Yesterday, 08:50 AM
    Rach3ica, Thank you for your post. Did you Daughter have any symptoms as an infant and what symptoms does she have now? What does does 3...
    8 replies | 2409 view(s)
  • Ratatosk's Avatar
    Yesterday, 08:45 AM
    I know a number of people, who have dd F508, including my child with varying diagnoses and progression. My son was diagnosed at birth due to...
    36 replies | 2521 view(s)
  • LittleLab4CF's Avatar
    03-26-2017, 10:28 PM
    I'm embarrassed to be a citizen of a Nation that is obsessed with material wealth and possessions to the exclusion of quality health care for all...
    8 replies | 1041 view(s)
  • ethan508's Avatar
    03-26-2017, 10:24 PM
    ethan508 replied to a thread Tobi in Adults
    It takes 15+ minutes. There is a powder version (Tobi Pod haler) that is considerably quicker (2-3 minutes). Some people don't tolerate the powder...
    8 replies | 378 view(s)
  • july's Avatar
    03-26-2017, 09:56 PM
    Yes. I have already tried to use coconut oil. After using for a while, i am very happy because my eyebrows are thicker now. Coconut oil is one of...
    49 replies | 7920 view(s)
  • Jshet22's Avatar
    03-26-2017, 09:05 PM
    Jshet22 replied to a thread Tobi in Adults
    Thank you ethan508. I was wondering how long it takes to neb the Tobi. Hoping it won't keep him tied down much longer then he already is. He does...
    8 replies | 378 view(s)
  • ethan508's Avatar
    03-26-2017, 08:22 PM
    The 37 expected life span would be a lot higher if they excluded patients with 'sever' disease manifestations. CF still takes some in infancy and...
    36 replies | 2521 view(s)
  • ethan508's Avatar
    03-26-2017, 08:14 PM
    Sunny, welcome to the forum, I'm sorry we aren't meeting under more pleasant circumstances for you. Your son's diagnosis would have been similar...
    36 replies | 2521 view(s)
  • ethan508's Avatar
    03-26-2017, 09:02 AM
    ethan508 replied to a thread Tobi in Adults
    Like kenna2 said, 28 days on, 28 days off Tobi cycles are common for those of us that culture pseudomonas. I don't tolerate inhaled Tobi super well...
    8 replies | 378 view(s)
  • Sunny9432's Avatar
    03-26-2017, 06:59 AM
    I have one other issue that is concerning me that I'm going to ask the doctor about. I have online access to all his lab results. His first glucose...
    36 replies | 2521 view(s)
  • Sunny9432's Avatar
    03-26-2017, 05:50 AM
    It also makes me wonder if the 37 year lifespan for cf would not be that high, if they excluded patients with the "mild" class mutations who likely...
    36 replies | 2521 view(s)
  • Sunny9432's Avatar
    03-26-2017, 05:40 AM
    I know they say that certain cftr mutation pairings cause a more "mild" form of the disease or are more likely to affect sinuses/gi and not as much...
    36 replies | 2521 view(s)
  • Rebjane's Avatar
    03-26-2017, 04:53 AM
    Thank you!
    2 replies | 445 view(s)
  • Jshet22's Avatar
    03-25-2017, 09:43 PM
    Jshet22 replied to a thread Tobi in Adults
    Thank you so much kenna2. I understand things better. Also thank you for the heads up on the hearing, I was not aware of this. I will be sure to...
    8 replies | 378 view(s)
  • jricci's Avatar
    03-25-2017, 07:32 AM
    Cleaning between uses: It's recommended that you disassemble parts, soak with soap and water for 15 min and let air dry before reassembling (suggests...
    2 replies | 445 view(s)
  • jricci's Avatar
    03-25-2017, 07:03 AM
    jricci replied to a thread American Healthcare Act in Adults
    Our Voice is Powerful A note from Mary B. Dwight SVP for Policy & Patient Assistance Programs Cystic Fibrosis Foundation: To our amazing CF...
    8 replies | 1041 view(s)
  • kenna2's Avatar
    03-24-2017, 10:36 PM
    kenna2 replied to a thread Tobi in Adults
    Tobi is given to battle Pseudomonas which is a common thing that is cultured in CF patients. Since this is new to him this could either be because he...
    8 replies | 378 view(s)
  • LittleLab4CF's Avatar
    03-24-2017, 07:21 PM
    I discovered that a suspicion I have held for a long time about CF isn't an original thought. Imogene, our fearless Founder of CysticFibrosis.com...
    36 replies | 2521 view(s)
  • Jshet22's Avatar
    03-24-2017, 07:19 PM
    Jshet22 started a thread Tobi in Adults
    Hi everyone. I haven't been on here in awhile and looked at archive posts to see if I could find an answer and didn't see anything. My son is 20...
    8 replies | 378 view(s)
  • Mom2girls's Avatar
    03-24-2017, 02:30 PM
    My heart is with your family as you endure your son's 1st hospitalization. I hope it goes smoothly with no complications.
    36 replies | 2521 view(s)
  • bleedblue711's Avatar
    03-24-2017, 01:00 PM
    Thank you so much for the information and explanation. I have the 7T & 9T. I will give an update after I meet with my doctor in June. Thanks again.
    5 replies | 746 view(s)
  • Rebjane's Avatar
    03-24-2017, 09:15 AM
    Could you put it in a WABI? Can you sterilize it?
    2 replies | 445 view(s)
  • Rutgersnyy's Avatar
    03-24-2017, 07:49 AM
    Rutgersnyy replied to a thread Skin Problems in Adults
    Is Emily still alive?
    100 replies | 4216 view(s)
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