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  • 4hats's Avatar
    Yesterday, 08:57 PM
    4hats replied to a thread Low grade fevers and swelling in Adults
    I have been using Cassia, cinnamon and oregano. I rotate between them, using two of the oils every night. Just a drop or two on the bottom of my...
    7 replies | 444 view(s)
  • kgfrompa's Avatar
    Yesterday, 06:47 PM
    I sighed up for a meditation class got the mindfulness Based stree reduction workbook but I have not goten any emails and Now i am not sure where i...
    0 replies | 19 view(s)
  • Mom2girls's Avatar
    Yesterday, 04:03 PM
    Thank you all. She's already handling it better!
    7 replies | 407 view(s)
  • jesuscantu's Avatar
    Yesterday, 03:52 PM
    For me 600mg ibuprofen and some sports cream on the legs will make me feel better and ease pain.
    7 replies | 444 view(s)
  • mom2two's Avatar
    Yesterday, 03:52 PM
    I think when you are learning a woodwind instrument, you use a ton more air than normal because you have no technique. Once she gets technique, it...
    7 replies | 407 view(s)
  • Ratatosk's Avatar
    Yesterday, 11:03 AM
    Ratatosk replied to a thread questions on travelling in Adults
    Medical equipment doesn't count toward your carry on allotment. I've rarely had issues with the vest fitting in the overhead compartment. I once...
    2 replies | 152 view(s)
  • Rebjane's Avatar
    Yesterday, 06:53 AM
    Rebjane replied to a thread American Healthcare Act in Adults
    triples15, Your concerns are my concerns. You are very eloquent and I think you are correct to focus on 2 points in regard to Medicaid; the elderly...
    28 replies | 2399 view(s)
  • kenna2's Avatar
    06-27-2017, 09:18 PM
    Thank you for your response. Can I ask what essential oils you started using?
    7 replies | 444 view(s)
  • kenna2's Avatar
    06-27-2017, 09:15 PM
    kenna2 replied to a thread questions on travelling in Adults
    I'm from Ohio. For me the dry heat actually made it easier for me to breathe. I actually have more issues adjusting to coming home and getting back...
    2 replies | 152 view(s)
  • kenna2's Avatar
    06-27-2017, 09:08 PM
    Voted!! Good luck!!
    2 replies | 116 view(s)
  • Jshet22's Avatar
    06-27-2017, 08:22 PM
    Your drawing is incredible. I just voted and shared on my FB page. I hope you win, good luck.
    2 replies | 116 view(s)
  • Jeana Lynn's Avatar
    06-27-2017, 07:36 PM
    Jeana Lynn started a thread Post CF bills in Adults
    We need to do this! A little boy's heart surgery bill goes viral about annual/lifetime caps! Anyone have CF bills they can share and pics doing...
    0 replies | 102 view(s)
  • 4hats's Avatar
    06-27-2017, 07:22 PM
    4hats replied to a thread Low grade fevers and swelling in Adults
    Also, I did see a rheumatologist and immunologist during that time period. They ruled a lot of stuff out.....
    7 replies | 444 view(s)
  • 4hats's Avatar
    06-27-2017, 07:20 PM
    4hats replied to a thread Low grade fevers and swelling in Adults
    I have cultured MAC. About a year and a half ago I was having similar issues, low grade fevers up to 101 or so, and swelling of joints, etc...very...
    7 replies | 444 view(s)
  • beautifulsoul's Avatar
    06-27-2017, 07:16 PM
    Mucus slime craft will be posted next month! :D
    2 replies | 341 view(s)
  • beautifulsoul's Avatar
    06-27-2017, 06:58 PM
    Please vote for my mixed media submission under the name Amber Church for the Rare Diseases Art Contest on Facebook! It will only take a second of...
    2 replies | 116 view(s)
  • alex101's Avatar
    06-27-2017, 05:26 PM
    alex101 started a thread questions on travelling in Adults
    so, i decided to join this forum to better educate myself on my disease, and to get some insight. my question is this; i'm from up north. my...
    2 replies | 152 view(s)
  • triples15's Avatar
    06-27-2017, 01:25 PM
    triples15 replied to a thread American Healthcare Act in Adults
    Hi again all! I'm sorry for the tone of my previous post being negative/defeatist. I'm going to be honest, this whole issue has sent me into a...
    28 replies | 2399 view(s)
  • Ratatosk's Avatar
    06-27-2017, 11:52 AM
    Ratatosk replied to a thread Which pump ? in Adults
    We're in the states and we use a Pari Vios for travel. We used to have a Devilbiss Pulmoaid as well for home use, but it's a bit bulkier. Both...
    1 replies | 89 view(s)
  • Jeana Lynn's Avatar
    06-27-2017, 10:49 AM
    Jeana Lynn replied to a thread American Healthcare Act in Adults
    Thank you Rebjane! Yesterday I sent my letter in to our state newspaper and I hope they publish it. I have already contacted my senators and called...
    28 replies | 2399 view(s)
  • Kangaroo15's Avatar
    06-27-2017, 09:37 AM
    Kangaroo15 started a thread Which pump ? in Adults
    I come to the u.s.a a lot and on a lot of neb medicines like everyone else. Hypertonic, albuterol, and antibiotics. I don't qualify for pulmozyme in...
    1 replies | 89 view(s)
  • Simba15's Avatar
    06-27-2017, 08:44 AM
    Simba15 replied to a thread American Healthcare Act in Adults
    You and I will go into a high risk pool. If you are paying for it yourself you will not be able to afford it and neither will I
    28 replies | 2399 view(s)
  • Rebjane's Avatar
    06-27-2017, 07:41 AM
    Rebjane replied to a thread Now that summer is here in Adults
    We have to be careful as well. Lots of Gatorade. If the air quality and humidity is bad try to avoid exersizing that day or during the peak heat...
    3 replies | 238 view(s)
  • Rebjane's Avatar
    06-27-2017, 07:28 AM
    Rebjane replied to a thread American Healthcare Act in Adults
    FYI, I called Senator Susan Collins yesterday to express my concerns about the BRCA. I focused on annual caps and Lifetime maximums and let the know...
    28 replies | 2399 view(s)
  • Imogene's Avatar
    06-27-2017, 04:41 AM
    Some of you know I will be speaking tomorrow at the https://panagorapharma.com/mobiletech/speakers-2/ Today....I will meet many of the other...
    0 replies | 76 view(s)
  • Jshet22's Avatar
    06-26-2017, 08:06 PM
    Jshet22 replied to a thread Now that summer is here in Adults
    Hey, thanks for the reply. I'm hoping this improves as summer wears on. He is not due back at clinic until the end of July, but if this continues...
    3 replies | 238 view(s)
  • Jeana Lynn's Avatar
    06-26-2017, 07:15 PM
    Jeana Lynn replied to a thread American Healthcare Act in Adults
    I have heard that if you contact senators out of state, the email is disregarded and doesn't reach them. Is this true?
    28 replies | 2399 view(s)
  • Jeana Lynn's Avatar
    06-26-2017, 07:13 PM
    Jricci, I have heard that if you contact senators out of state, the email is disregarded and doesn't reach them. Is this true?
    6 replies | 469 view(s)
  • Tekoa's Avatar
    06-26-2017, 05:04 PM
    Tekoa replied to a thread American Healthcare Act in Adults
    As an adult with cf, will I lose my insurance under the new health care bill? I have Children's special health care. I'm sorry if this sort of...
    28 replies | 2399 view(s)
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