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  • eh3an2011's Avatar
    Yesterday, 11:24 PM
    eh3an2011 posted a visitor message on eh3an2011's profile
    طراحی سایت شرکت اسپیناس شرکت داده پردازان اسپیناس وب با نام تجاری شرکت اسپیناس فعالیت خود در تهران آغاز کرد. طراحی سایت اسپیناس با داشتن بهترین...
  • bonniee.fahey-'s Avatar
    Yesterday, 08:07 AM
    I tried on my congratulation: I came having so many words, I wanted to tell them with passion But failed… I’m so shied! My heart hurts! But is it...
    0 replies | 50 view(s)
  • ethan508's Avatar
    06-22-2018, 03:14 PM
    ethan508 replied to a thread Symdeko Headache in Adults
    I have checked my O2 twice when waking up early AM. Without headache I was 50 bpm and 98% O2, with headache I was 68 bpm and 97% O2. The increase...
    3 replies | 885 view(s)
  • Ratatosk's Avatar
    06-21-2018, 01:23 PM
    Although it's always been advised to go to a CFF accredited facility to get a sweat test for consistency and accuracy, any medical clinic can do...
    1 replies | 289 view(s)
  • iceskater7's Avatar
    06-21-2018, 12:22 PM
    Hello friends! I recently had a genetic test done, and no mutations appeared. However, I'm 24 and my primary issues are GI and sinus, with mild...
    1 replies | 289 view(s)
  • Ratatosk's Avatar
    06-21-2018, 10:11 AM
    Ratatosk replied to a thread Anti-IgE Test in Adults
    Turns out they were supposed to run a regular IGE test or panel and not the Anti-IGE test. So next time he has bloodwork, it's on order.
    2 replies | 552 view(s)
  • Praetorian's Avatar
    06-20-2018, 01:47 PM
    Praetorian replied to a thread Weight Gain in Nutrition
    Alex, I don't know your daily habits or energy levels, but what has worked for me so far is to focus on proteins and use fat as a secondary energy...
    86 replies | 20301 view(s)
  • rtorres25's Avatar
    06-19-2018, 10:14 PM
    rtorres25 replied to a thread Symdeko Headache in Adults
    Your headache sounds like the one I had when my O2 levels dropped. Do you have a pulse oximeter to check it before you get out of bed? Mine were...
    3 replies | 885 view(s)
  • Printer's Avatar
    06-19-2018, 03:51 PM
    Ken: I'm so very glad that you are doing well. Bill
    2 replies | 272 view(s)
  • Imogene's Avatar
    06-19-2018, 08:01 AM
    https://pharmaphorum.com/news/patients-call-for-end-to-two-year-row-over-cf-drug-funding/?utm_source=pharmaphorum+Daily+Newsletter+%28updated+at+17082...
    0 replies | 275 view(s)
  • Imogene's Avatar
    06-18-2018, 04:42 PM
    Survey #3https://www.surveymonkey.com/r/NR9PRDY has 100 participants! 25.00 gift cards to participant 125 and 150! Participant 100 is from...
    33 replies | 16831 view(s)
  • Palmer's Avatar
    06-18-2018, 08:35 AM
    Palmer replied to a thread American Healthcare Act in Adults
    it's all very sad
    39 replies | 8415 view(s)
  • kenna2's Avatar
    06-15-2018, 05:39 PM
    kenna2 replied to a thread Symdeko Headache in Adults
    I had headaches when I first started Symdeko as well. They went away after about 3 weeks for me. Still on Symdeko and doing well. Hopefully this is...
    3 replies | 885 view(s)
  • ethan508's Avatar
    06-15-2018, 12:16 PM
    ethan508 started a thread Symdeko Headache in Adults
    I am switching from Orkambi to Symdeko because the Orkambi had consistently increased the tight feeling in my breathing despite me picking up...
    3 replies | 885 view(s)
  • ethan508's Avatar
    06-15-2018, 12:02 PM
    ethan508 replied to a thread Question about order in Adults
    Thanks for posting that study Stephan, very interesting.
    11 replies | 1776 view(s)
  • LittleLab4CF's Avatar
    06-15-2018, 02:04 AM
    LittleLab4CF replied to a thread Question about order in Adults
    I'm not going to be able to answer your question about Xopenex. I did a "Search" of Xopenex and there are in excess of 500 references in over 500...
    11 replies | 1776 view(s)
  • Starfall99's Avatar
    06-14-2018, 11:38 AM
    Starfall99 replied to a thread Question about order in Adults
    Was just logging in to post this exact question, so thanks outofthisworld! I've been doing Pulmozyme after airway clearance, because my previous CF...
    11 replies | 1776 view(s)
  • Imogene's Avatar
    06-13-2018, 11:05 AM
    Hi All! Our Survey#3mHealth Attitudes is up to 85 participants! Participant #75 received a gift card. A patient from Minnesota. The 100th and...
    33 replies | 16831 view(s)
  • Jshet22's Avatar
    06-12-2018, 01:37 PM
    Jshet22 replied to a thread Pseudomonas fluorescens in Families
    Thank you so much for replying. The doc called this morning and said he's gonna put him on tobi for 28 days to see if that rids it. He will make a...
    2 replies | 365 view(s)
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