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  • kenna2's Avatar
    Today, 10:24 PM
    Some people love the Vest and it works well for them. For others , like me, I don't feel it does enough or gets to the areas I feel are clogged. I...
    1 replies | 32 view(s)
  • Sarah 95's Avatar
    Today, 06:30 PM
    Hi there, I'm 24 years old female and I would love to hear peoples opinions about the cystic fibrosis vibrating vest? Do you think they help a lot...
    1 replies | 32 view(s)
  • kenna2's Avatar
    Today, 03:26 PM
    I'm so excited!! I hope everyone is able to get this and improve on it!!
    1 replies | 60 view(s)
  • Ratatosk's Avatar
    Today, 02:48 PM
    https://www.fda.gov/news-events/press-announcements/fda-approves-new-breakthrough-therapy-cystic-fibrosis
    1 replies | 60 view(s)
  • findcure's Avatar
    10-19-2019, 07:47 PM
    CFTR is ultimately responsible for the symptoms, but it has modifier genes that will affect penetration of the mutations.
    3 replies | 8615 view(s)
  • fel's Avatar
    10-18-2019, 07:31 PM
    Just to update anyone who might be interested in this: I did find a work around. I purchased a Fluid Flo from med systems. It is basically the...
    1 replies | 943 view(s)
  • Ratatosk's Avatar
    10-14-2019, 10:35 PM
    Ratatosk replied to a thread Constipation in Adults
    Thanks for your response. Something to keep in mind. He tends to take awhile to recover from stomach bugs. I've heard norovirus is going around. ...
    5 replies | 2308 view(s)
  • LittleLab4CF's Avatar
    10-14-2019, 08:01 PM
    Until recently I have been absent for two years plus. Normally I would be welcoming you to the site. I'm an old man with CF, diagnosed by sweat...
    1 replies | 555 view(s)
  • LittleLab4CF's Avatar
    10-14-2019, 03:21 PM
    LittleLab4CF replied to a thread Constipation in Adults
    This is just a thought, based on what I have been trying to resolve for the last two years and possibly three or four years. What is the status of...
    5 replies | 2308 view(s)
  • Clear Sky's Avatar
    10-09-2019, 10:29 AM
    Hi, my name is Sky. I have cystic fibrosis. I was a late diagnosis at the age of 6, but I have been doing well. My health has deteriorated recently,...
    1 replies | 555 view(s)
  • Ratatosk's Avatar
    10-04-2019, 11:10 PM
    Ratatosk replied to a thread Constipation in Adults
    It's just been such an incredibly long time since we've had to deal with something like this. Still stooling, albeit harder ones and stomach...
    5 replies | 2308 view(s)
  • Rebjane's Avatar
    10-04-2019, 02:37 PM
    Rebjane replied to a thread Constipation in Adults
    We use one cap of Miralax twice a day every day. One of the doses I mix with Gatorade zero. We also do Prune juice mixed with diet pepsi, every...
    5 replies | 2308 view(s)
  • kenna2's Avatar
    10-04-2019, 10:45 AM
    kenna2 replied to a thread Constipation in Adults
    Miralax can help, and I know a lot of people do about about 2 cap fulls twice a day. However, you have to be really careful with it. If the powder...
    5 replies | 2308 view(s)
  • Ratatosk's Avatar
    10-04-2019, 06:37 AM
    Ratatosk started a thread Constipation in Adults
    DS had a stomach bug last weekend and when this usually happened he'd have very loose stools in the weeks that followed along with decreased appetite...
    5 replies | 2308 view(s)
  • JustaCFmom's Avatar
    10-03-2019, 01:43 PM
    JustaCFmom posted a visitor message on jricci's profile
    Hi, I would love to get that link to the webinar about kalydeco and pregnancy. My daughter is expecting now and we would appreciate any...
  • RichardJansson's Avatar
    09-30-2019, 07:34 PM
    I do not know, how they do so. But it is really great to make sure in the current blog mood improving. It is funny and joyful.
    2 replies | 8903 view(s)
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