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  • Gibson75's Avatar
    Today, 03:51 PM
    Gibson75 replied to a thread Atypical CF in Newly Diagnosed
    Thank you for your reply Ratatosk. Yes I have heard of some CF's that have a positive sweat test and have very little symptoms when they are young....
    2 replies | 380 view(s)
  • veggiebin's Avatar
    Today, 11:49 AM
    I was reading a post on DIOS from April and your comments on pancreatitis/mucus barrier. I find your posts informative, so I thought Iíd ask your...
  • Alorance9571's Avatar
    Yesterday, 02:22 PM
    Alorance9571 replied to a thread Cipro and Tendinitis in Adults
    Thanks Kenna, Thatís what I was thinking. My physical therapist is wonderful. I start Cayston next week so as long as my reaction to that isnít...
    2 replies | 266 view(s)
  • kenna2's Avatar
    Yesterday, 01:32 PM
    kenna2 replied to a thread Cipro and Tendinitis in Adults
    I sometimes get it in my shoulder from doing IV meds and yes it's worth it. Strength training/ physical therapy will help. The important thing is to...
    2 replies | 266 view(s)
  • Alorance9571's Avatar
    Yesterday, 01:09 PM
    So Iíve finished Cipro for my first pseudomonas Infection and am left with Tendinitis in my knees. This started when I first started taking the...
    2 replies | 266 view(s)
  • Donna Thomas's Avatar
    Yesterday, 01:42 AM
    Flutterby FUNdraisers for cystic fibrosis are embarking on a family fun day. Run, ride or walk. A 7.7k route along side the river Taff. The midway...
    0 replies | 12 view(s)
  • Imogene's Avatar
    05-18-2018, 07:02 PM
    This survey is only available to primary Caregivers of children with Cystic Fibrosis aged 12-24 months old and eligible for the medication...
    0 replies | 228 view(s)
  • fel's Avatar
    05-16-2018, 12:09 PM
    fel replied to a thread Adrenal insufficiency in Adults
    Update: We figured out the cause of the adrenal insufficiency/low cortisol. It was the budesenide (steroid) in his sinus rinses, used to treat...
    8 replies | 4051 view(s)
  • fel's Avatar
    05-16-2018, 12:00 PM
    fel replied to a thread 13-25 year olds - we need you! in Adults
    Hi, There is a thriving reddit/discord community for CFers -- you may want to tap into them for your study. ...
    1 replies | 232 view(s)
  • stylecomfy's Avatar
    05-14-2018, 04:11 PM
    stylecomfy replied to a thread CF related diabetes in Adults
    Hi Julie, I do think the sliding scale is for more severe CFRD meaning they need long acting insulin to cover their baseline and then the short...
    10 replies | 1739 view(s)
  • julie61554's Avatar
    05-14-2018, 10:22 AM
    julie61554 replied to a thread CF related diabetes in Adults
    Thanks for the information. My doctor never mentioned anything to me about a sliding scale. I go see her next week so hopefully I can get answers...
    10 replies | 1739 view(s)
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