Activity Stream

I am sick every month and I use a pic line What are the advantages of using a port over a pic line And what is a port and where and how is it...

I went to the Blockchain Conference at the Beth Israel Deaconess Hospital in Boston last Thursday, January 31. It was an elite group of scientists...

So I'm having issues with coughing up blood anytime I get my heart rate up. It's annoying and some of the most basic exercises set it off. I can't...

For those who don't already subscribe to the CF Roundtable newsletter: The special winter CF Roundtable® issue on Organ Transplantation in CF will...

Hey how are you I’m Matthew I’m from the uk I’m 20 and I’ve got cf,cfrd and anxiety just looking to talking to someone that know how and what it...

The fight to get Vertex’s cystic fibrosis drug Orkambi available on England’s NHS continues, after pressure groups called on the government to...

DS' doctor prescribed 7% sodium chloride for inhalation last fall with his albuterol. Previously he'd been on albuterol/atrovent nebs. They...

Has anyone ever had a capsule endoscopy done? I have one scheduled for Friday and just wanted to know your experience with it. Thanks.

Hi all, I've had a port for about five years, but have only had to use it once for somewhat long-term IVs. I'm about to start very long-term IV...

Has anyone been on zyprexa that didn't gain a lot of weight. Its not a cf drug It is a mood disorder disease. I just started 5 mg Is that the...

Hi, I'm newly diagnosed with CF and I am 28 years old. I know that might seem really old to be being first diagnosed but that's what happened to me....

Any tips on increasing lung function? I've had a 20% decline in the past month due to pneumonia and am trying to get mine back up, but it's not...

Hi guys I'm just wondering how all of you clean your Cayston equipment (the grey && black cord, purple handset, etc) because I notice that my grey...

hi, if anyone has information about hours or years these systems last i would appreciate it i'm considering purchase of a used system, probably...

Does anyone do nasal administration of antibiotics? If so would you mind sharing what antibiotic or antibiotics and much, mg etc. as well how it is...

Does anyone do nasal administration of antibiotics? If so would you mind sharing what antibiotic or antibiotics and much, mg etc. as well how it is...