Activity Stream - CysticFibrosis.com

Sort By	Time	Show
Recent Recent Popular Popular	Anytime Anytime Last 24 Hours Last 24 Hours Last 7 Days Last 7 Days Last 30 Days Last 30 Days	All All Photos Photos Forum Forums

Older Activity
Today, 12:47 AM

Ratatosk replied to a thread any ideas on how long airway clearance systems last ? in Airway Clearance Techniques

Yes, it's a hill rom 105. Brand new vests from hill rom have a lifetime warranty, ds has had a vest for about 12 years. And I think they've...

see more

4 replies | 60 view(s)
Today, 12:17 AM

madarauchiha posted a visitor message on madarauchiha's profile

Web Design Training in chennai

see more
Yesterday, 11:31 PM

jethro replied to a thread any ideas on how long airway clearance systems last ? in Airway Clearance Techniques

is this regarding a hill rom 105? 2 years is not a long time !

see more

4 replies | 60 view(s)
Yesterday, 10:24 PM

Ratatosk replied to a thread any ideas on how long airway clearance systems last ? in Airway Clearance Techniques

So my teen's vest stopped working tonight, wouldn't inflate properly. Pulled out the manual to call for a replacement and it said the machine should...

see more

4 replies | 60 view(s)
Yesterday, 06:16 PM

kaleyb posted a visitor message on kaleyb's profile

Best Recipes

see more
Yesterday, 04:15 PM

Ratatosk replied to a thread any ideas on how long airway clearance systems last ? in Airway Clearance Techniques

DS' first brand new vest lasted about 3-4 years. Since it was new and had a lifetime warranty, Hill Rom replaced it. I suspect the replacements are...

see more

4 replies | 60 view(s)
Yesterday, 03:57 PM

jethro started a thread any ideas on how long airway clearance systems last ? in Airway Clearance Techniques

hi, if anyone has information about hours or years these systems last i would appreciate it i'm considering purchase of a used system, probably...

see more

4 replies | 60 view(s)
Yesterday, 03:02 PM

Ratatosk replied to a thread Nasal administration of antibiotics. With most Cfers we have pseudomonas in our sinus in Transplants

I seem to recall once upon a time someone using a sinus nebulizer. Looked like a regular pari compressor and neb cup one held up to their noses. ...

see more

2 replies | 129 view(s)
Yesterday, 01:00 PM

Kristan replied to a thread Nasal administration of antibiotics. With most Cfers we have pseudomonas in our sinus in Transplants

I tried gentamicin in my sinus rinse. Prescribed a vial that I used a syringe to take out the amount and add to my rinse. I did not continue since...

see more

2 replies | 129 view(s)
02-20-2019, 09:38 PM

scanboyd started a thread Nasal administration of antibiotics. With most Cfers we have pseudomonas in our sinus in Transplants

Does anyone do nasal administration of antibiotics? If so would you mind sharing what antibiotic or antibiotics and much, mg etc. as well how it is...

see more

2 replies | 129 view(s)
02-20-2019, 09:19 PM

scanboyd started a thread Nasal administration of antibiotics. With most Cfers we have pseudomonas in our sinus in Adults

Does anyone do nasal administration of antibiotics? If so would you mind sharing what antibiotic or antibiotics and much, mg etc. as well how it is...

see more

0 replies | 247 view(s)
02-17-2019, 08:03 PM

Imogene replied to a thread Blockchain Caucus USA in Adults

Please reach out to the representatives and let them know we are beginning our Blockchain Pilot: endeavoring to pay patients for their data! All...

see more

3 replies | 2089 view(s)
02-17-2019, 06:45 PM

Imogene replied to a thread Blockchain Caucus USA in Adults

I reached out to Representative Eric Swalwell of California: Rep Swalwell! Very sorry to hear your daughter Cricket was in the hospital for...

see more

3 replies | 2089 view(s)
02-15-2019, 02:28 PM

stephen replied to a thread Cayston Equipment? in Adults

I rinse the "connector" on the Nebulizer Connection Cord with hot water when it becomes sticky.

see more

1 replies | 577 view(s)
02-15-2019, 01:49 PM

MirrorMirror started a thread Cayston Equipment? in Adults

Hi guys I'm just wondering how all of you clean your Cayston equipment (the grey && black cord, purple handset, etc) because I notice that my grey...

see more

1 replies | 577 view(s)
02-15-2019, 01:43 PM

MirrorMirror replied to a thread Infertility & Finding a Fertility Doctor in Pregnancy

I'm scared of the things I have heard about Clomid. However, every medication has it's up and it's downs right? Hopefully my CF doctor can point me...

see more

8 replies | 2366 view(s)
02-15-2019, 10:03 AM

kosdancer replied to a thread Increasing Lung Function in Adults

I'm so sorry to hear that! I know it's terrifying to lose so much so quickly. Some ideas... I assume you already had/have had IV antibiotics and...

see more

1 replies | 644 view(s)
02-14-2019, 03:23 PM

Meggy! replied to a thread Newly Diagnosed in Newly Diagnosed

Yes it is, it's one of the ones listed on the website that you gave me when I input my information.

see more

4 replies | 348 view(s)
02-14-2019, 03:00 PM

stephen replied to a thread Newly Diagnosed in Newly Diagnosed

Meggy, Is it at an accredited CF Center? That should be easy enough to check by going to the Cycsic Fibrosis Foundation website or to the link...

see more

4 replies | 348 view(s)
02-14-2019, 02:20 PM

Meggy! replied to a thread Newly Diagnosed in Newly Diagnosed

Yeah I made an appointment for Monday with the doctor that my regular doctor suggested.

see more

4 replies | 348 view(s)
02-14-2019, 12:28 PM

drplan posted a visitor message on drplan's profile

Disaster Recovery | Disaster Recovery as a Service | Benefits of Disaster Recovery Using Cloud Computing | Cloud Disaster Recovery

see more
02-14-2019, 10:02 AM

stephen replied to a thread Newly Diagnosed in Newly Diagnosed

I'll beat Printer and tell you to find a Cystic Fibrosis Foundation accredited CF Care Center! Follow the link below and enter your location. There...

see more

4 replies | 348 view(s)
02-14-2019, 02:09 AM

Meggy! replied to a thread Who are you in a nut shell in Adults

My name is Meggy I am a female I am 29 years of age I am married to a Airforce Airman We live in Northern California I love hanging out with...

see more

764 replies | 235291 view(s)
02-14-2019, 01:51 AM

Meggy! started a thread Newly Diagnosed in Newly Diagnosed

Hi, I'm newly diagnosed with CF and I am 28 years old. I know that might seem really old to be being first diagnosed but that's what happened to me....

see more

4 replies | 348 view(s)
02-13-2019, 09:46 PM

sunshine39656 started a thread Increasing Lung Function in Adults

Any tips on increasing lung function? I've had a 20% decline in the past month due to pneumonia and am trying to get mine back up, but it's not...

see more

1 replies | 644 view(s)
02-13-2019, 03:41 PM

LittleLab4CF replied to a thread Pic line vs. Port from mstein in Adults

In today's world everybody seems to have tattoos. When I was young, getting something as noticeable as a tattoo, nose rings, gauges and such labeled...

see more

8 replies | 1663 view(s)
02-13-2019, 02:24 PM

scanboyd replied to a thread Need to know the best hospitals for tansplant in Transplants

UT Southwestern Dallas Tx. Great place for having Lung Transplant!

see more

6 replies | 1741 view(s)