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  • Dahlia's Avatar
    Today, 11:15 AM
    Hi! I am 28 years old and gave birth to my son 3.5 months ago. We do not have a newborn screening here. He is a rapid breather, I noticed it after a...
    0 replies | 46 view(s)
  • Amfirth's Avatar
    Today, 04:27 AM
    Hi all. Long story short...my husband has CF, a friend needed a place to stay so we offered her our spare room. We didn't think much of it at the...
    0 replies | 42 view(s)
  • setelebas's Avatar
    Today, 02:56 AM
    setelebas posted a visitor message on setelebas's profile
    ست لباس دخترانه ایرانی ست لباس دخترانه مجلسی ست لباس دخترانه تابستانی ست لباس دخترانه مجلسی
  • setelebas's Avatar
    Today, 02:55 AM
    setelebas posted a visitor message on setelebas's profile
    ست لباس سبز با آبی و زرد ترکیب رنگ سبز آبی یا کله غازی یا رنگ سبز فیروزه ای با رنگ آبی بسیار مناسب است ست لباس قرمز با رنگ هایی مانند سفید Ė مشکی...
  • LittleLab4CF's Avatar
    Yesterday, 10:57 PM
    I have been waiting for some credible Public source to spell out the cautionary tale of the benefits and dangers of using a consumer genetic testing...
    1 replies | 222 view(s)
  • drminamoslemi's Avatar
    Yesterday, 12:54 AM
    My name is mina. I am a female. I am 29 years of age. I live in Southern CA and I LOVE LOVE LOVE it. I was dx at three weeks due to failure to...
    763 replies | 216259 view(s)
  • Imogene's Avatar
    12-14-2018, 10:30 AM
    https://www.bloomberg.com/news/articles/2018-06-15/deleting-your-online-dna-data-is-brutally-difficult Companies who use your DNA should...
    1 replies | 222 view(s)
  • igorko55's Avatar
    12-14-2018, 04:23 AM
    igorko55 replied to a thread F508 & d110h in DNA and Mutations
    Has she mucus in the lungs? Or why she needs to use the vest? What is the prognosis of patients with the use of the medicinal product kalydeco? ...
    32 replies | 9750 view(s)
  • meredithj's Avatar
    12-11-2018, 01:59 PM
    I am newly diagnosed in Jacksonville. I have seen Dr. Lascano one time so far, but am going for my first 'real' visit in January. I really liked...
    1 replies | 545 view(s)
  • Imogene's Avatar
    12-10-2018, 11:32 AM
    Aridis is a late-stage biopharmaceutical company focused on discovering and developing innovative anti-infectives, such as targeted immunotherapies...
    0 replies | 288 view(s)
  • Blairb1322's Avatar
    12-10-2018, 11:11 AM
    Can anyone explain what this means? We go for a sweat test on December 26 but I am worried :(
    0 replies | 357 view(s)
  • Ratatosk's Avatar
    12-08-2018, 09:51 AM
    Ordered up a new one after the mobilaire took a dive off the end table. Came with a green "nipple" adapter for tubing, will probably cannibalize the...
    10 replies | 1322 view(s)
  • LittleLab4CF's Avatar
    12-06-2018, 03:53 PM
    The best advice I was given regarding employment helped me a lot. 1. Always be worth more to your employer, than he/she is to you. 2. Assume 100%...
    3 replies | 3761 view(s)
  • kenna2's Avatar
    12-05-2018, 04:25 PM
    kenna2 replied to a thread CRMS & Mucus in Families
    Not sure if you are doing this or know about this, but my ENT who sees a lot of CF patients, has us adding a drop of baby shampoo to our sinus...
    1 replies | 141 view(s)
  • slk317's Avatar
    12-05-2018, 12:28 PM
    slk317 started a thread CRMS & Mucus in Families
    My 15 yo son was diagnosed last year with CRMS. He sees the CF doctor twice a year, or more as needed. He seems to suffer the most in the winter, and...
    1 replies | 141 view(s)
  • kenna2's Avatar
    12-03-2018, 04:55 PM
    I know a lot of CFers have jobs where they can work from home or remotely. I don't know specifics, but I'm just sharing the knowledge I have.
    3 replies | 3761 view(s)
  • alcaesar's Avatar
    12-03-2018, 03:40 PM
    Hello, I am a 24 year old male living with CF and I have a question. I have been let go from jobs time and time again for lack of being able to...
    3 replies | 3761 view(s)
  • blackchameleon's Avatar
    12-03-2018, 08:33 AM
    G'day again everyone, it's been 8 years since i was in here seeking information regarding info of the possibility of infertility issues surrounding...
    0 replies | 1014 view(s)
  • Gammaw's Avatar
    12-03-2018, 06:02 AM
    I have the Precision Medical Easy Aire which is a 50 psi and itís a workhorse. Iíve had it for several years now without any problem. Iíve never...
    10 replies | 1322 view(s)
  • Ratatosk's Avatar
    12-02-2018, 11:04 PM
    Has anyone found a good replacement for the 50 psi compressor? Looked at the precision medical one online, but wasn't sure if it was compatible
    10 replies | 1322 view(s)
  • jricci's Avatar
    11-29-2018, 11:01 AM
    I'm guessing most have seen this already, but thought I'd share in case you missed it: Incredible Phase 3 results for VX-659!!!:) From Vertex...
    0 replies | 1233 view(s)
  • emason's Avatar
    11-28-2018, 12:33 PM
    emason started a thread Tracheal Tug in Families
    Hi everyone! I'm wondering if anyone has any ideas about this. My 4.5 year old has a CRMS dx (1 classic CF mutation, 1 rare variable mutation,...
    0 replies | 406 view(s)
  • Jeannie85's Avatar
    11-27-2018, 02:35 PM
    Jeannie85 replied to a thread F508 & d110h in DNA and Mutations
    She has never had an exacerbation. She has only be in antibiotic for ear infections. She plays and runs with the kids in her class without trouble...
    32 replies | 9750 view(s)
  • igorko55's Avatar
    11-27-2018, 11:48 AM
    igorko55 replied to a thread F508 & d110h in DNA and Mutations
    Thank you for your response. Our son has no symptoms. The salt test is 59 and 60, the pancreas functional. Unfortunately Kalydeco in Slovakia is not...
    32 replies | 9750 view(s)
  • iceskater7's Avatar
    11-27-2018, 11:03 AM
    This is incredible! I'm in the process of being evaluated for a late diagnosis of CF (I leave for the Mayo Clinic next week--fingers crossed!), but...
    13 replies | 6278 view(s)
  • Jeannie85's Avatar
    11-27-2018, 10:25 AM
    Jeannie85 replied to a thread F508 & d110h in DNA and Mutations
    My 5 year old daughter has d110h and delta508. She has been healthy other than kid stuff like colds due to being in school. Last year she had...
    32 replies | 9750 view(s)
  • igorko55's Avatar
    11-27-2018, 09:43 AM
    igorko55 replied to a thread F508 & d110h in DNA and Mutations
    Hello. I'm from Slovakia. I have a son, 1 year old. Has mutations D110H and deletion exons 4,5 and 6. Is there anyone who has this mutation D110H ???...
    32 replies | 9750 view(s)
  • ToriMom's Avatar
    11-26-2018, 12:08 PM
    Hello Friends! I have a few questions for those of you who have taken the Vertex modulators and experienced elevated liver enzymes. How...
    0 replies | 529 view(s)
  • Jeannie85's Avatar
    11-24-2018, 09:28 PM
    Jeannie85 replied to a thread F508 & d110h in DNA and Mutations
    I do not understand what you are asking. Could you try to rephrase it?
    32 replies | 9750 view(s)
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