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  • htcfansvnser's Avatar
    Yesterday, 10:05 PM
    Đại lư Máy trợ giảng An Phát home page: http://maytrogiang.vn/ Mua máy trợ giảng tại Hà Nội: http://maytrogiang.vn/mua-may-tro-giang-tai-ha-noi/...
  • kenna2's Avatar
    Yesterday, 09:18 PM
    Thank you for your response. Can I ask what essential oils you started using?
    5 replies | 370 view(s)
  • kenna2's Avatar
    Yesterday, 09:15 PM
    kenna2 replied to a thread questions on travelling in Adults
    I'm from Ohio. For me the dry heat actually made it easier for me to breathe. I actually have more issues adjusting to coming home and getting back...
    1 replies | 61 view(s)
  • kenna2's Avatar
    Yesterday, 09:08 PM
    Voted!! Good luck!!
    2 replies | 59 view(s)
  • Jshet22's Avatar
    Yesterday, 08:22 PM
    Your drawing is incredible. I just voted and shared on my FB page. I hope you win, good luck.
    2 replies | 59 view(s)
  • Jeana Lynn's Avatar
    Yesterday, 07:36 PM
    Jeana Lynn started a thread Post CF bills in Adults
    We need to do this! A little boy's heart surgery bill goes viral about annual/lifetime caps! Anyone have CF bills they can share and pics doing...
    0 replies | 22 view(s)
  • 4hats's Avatar
    Yesterday, 07:22 PM
    4hats replied to a thread Low grade fevers and swelling in Adults
    Also, I did see a rheumatologist and immunologist during that time period. They ruled a lot of stuff out.....
    5 replies | 370 view(s)
  • 4hats's Avatar
    Yesterday, 07:20 PM
    4hats replied to a thread Low grade fevers and swelling in Adults
    I have cultured MAC. About a year and a half ago I was having similar issues, low grade fevers up to 101 or so, and swelling of joints, etc...very...
    5 replies | 370 view(s)
  • beautifulsoul's Avatar
    Yesterday, 07:16 PM
    Mucus slime craft will be posted next month! :D
    2 replies | 328 view(s)
  • beautifulsoul's Avatar
    Yesterday, 06:58 PM
    Please vote for my mixed media submission under the name Amber Church for the Rare Diseases Art Contest on Facebook! It will only take a second of...
    2 replies | 59 view(s)
  • alex101's Avatar
    Yesterday, 05:26 PM
    alex101 started a thread questions on travelling in Adults
    so, i decided to join this forum to better educate myself on my disease, and to get some insight. my question is this; i'm from up north. my...
    1 replies | 61 view(s)
  • triples15's Avatar
    Yesterday, 01:25 PM
    triples15 replied to a thread American Healthcare Act in Adults
    Hi again all! I'm sorry for the tone of my previous post being negative/defeatist. I'm going to be honest, this whole issue has sent me into a...
    27 replies | 2322 view(s)
  • Ratatosk's Avatar
    Yesterday, 11:52 AM
    Ratatosk replied to a thread Which pump ? in Adults
    We're in the states and we use a Pari Vios for travel. We used to have a Devilbiss Pulmoaid as well for home use, but it's a bit bulkier. Both...
    1 replies | 49 view(s)
  • Jeana Lynn's Avatar
    Yesterday, 10:49 AM
    Jeana Lynn replied to a thread American Healthcare Act in Adults
    Thank you Rebjane! Yesterday I sent my letter in to our state newspaper and I hope they publish it. I have already contacted my senators and called...
    27 replies | 2322 view(s)
  • Kangaroo15's Avatar
    Yesterday, 09:37 AM
    Kangaroo15 started a thread Which pump ? in Adults
    I come to the u.s.a a lot and on a lot of neb medicines like everyone else. Hypertonic, albuterol, and antibiotics. I don't qualify for pulmozyme in...
    1 replies | 49 view(s)
  • Simba15's Avatar
    Yesterday, 08:44 AM
    Simba15 replied to a thread American Healthcare Act in Adults
    You and I will go into a high risk pool. If you are paying for it yourself you will not be able to afford it and neither will I
    27 replies | 2322 view(s)
  • Rebjane's Avatar
    Yesterday, 07:41 AM
    Rebjane replied to a thread Now that summer is here in Adults
    We have to be careful as well. Lots of Gatorade. If the air quality and humidity is bad try to avoid exersizing that day or during the peak heat...
    3 replies | 173 view(s)
  • Rebjane's Avatar
    Yesterday, 07:28 AM
    Rebjane replied to a thread American Healthcare Act in Adults
    FYI, I called Senator Susan Collins yesterday to express my concerns about the BRCA. I focused on annual caps and Lifetime maximums and let the know...
    27 replies | 2322 view(s)
  • Imogene's Avatar
    Yesterday, 04:41 AM
    Some of you know I will be speaking tomorrow at the https://panagorapharma.com/mobiletech/speakers-2/ Today....I will meet many of the other...
    0 replies | 49 view(s)
  • Jshet22's Avatar
    06-26-2017, 08:06 PM
    Jshet22 replied to a thread Now that summer is here in Adults
    Hey, thanks for the reply. I'm hoping this improves as summer wears on. He is not due back at clinic until the end of July, but if this continues...
    3 replies | 173 view(s)
  • Jeana Lynn's Avatar
    06-26-2017, 07:15 PM
    Jeana Lynn replied to a thread American Healthcare Act in Adults
    I have heard that if you contact senators out of state, the email is disregarded and doesn't reach them. Is this true?
    27 replies | 2322 view(s)
  • Jeana Lynn's Avatar
    06-26-2017, 07:13 PM
    Jricci, I have heard that if you contact senators out of state, the email is disregarded and doesn't reach them. Is this true?
    6 replies | 428 view(s)
  • Tekoa's Avatar
    06-26-2017, 05:04 PM
    Tekoa replied to a thread American Healthcare Act in Adults
    As an adult with cf, will I lose my insurance under the new health care bill? I have Children's special health care. I'm sorry if this sort of...
    27 replies | 2322 view(s)
  • Ratatosk's Avatar
    06-26-2017, 04:55 PM
    Ratatosk replied to a thread Now that summer is here in Adults
    A friend of mine's daughter had issues with overheating even in the winter time -- she couldn't wait inside in her winter coat waiting for her mom or...
    3 replies | 173 view(s)
  • Jshet22's Avatar
    06-26-2017, 09:17 AM
    Jshet22 started a thread Now that summer is here in Adults
    Hi guys, quick question. Any of you or your children become extremely exhausted after spending an afternoon outside when it's warm? My son seems to...
    3 replies | 173 view(s)
  • kenna2's Avatar
    06-25-2017, 10:53 PM
    I am still taking Lovenox, but that was ruled out as the cause of the swelling. I'll have to ask about a new bug, but as far as I know I've always...
    5 replies | 370 view(s)
  • Mg930's Avatar
    06-24-2017, 10:06 PM
    Mg930 replied to a thread Low grade fevers and swelling in Adults
    Are you still taking Lovenox? It can cause leg swelling. I saw you have a history of a pulmonary embolism? I wonder if a cardiac and lower...
    5 replies | 370 view(s)
  • MissAlexsBP's Avatar
    06-24-2017, 08:26 PM
    Jeana, Your letter was beautifully worded! Accurate and getting the scary, matter-of-fact point across!
    6 replies | 428 view(s)
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