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  • BSpiegel's Avatar
    Yesterday, 11:17 PM
    God bless everyone. Praying for anyone who needs prayers tonight.
    0 replies | 120 view(s)
  • Golubicc's Avatar
    05-21-2018, 02:11 PM
    We all understand your worry and that's natural and normal but not exposing your child to life is worse then any virus. I am not saying that to be...
    4 replies | 647 view(s)
  • NickNgaruiya's Avatar
    05-21-2018, 08:54 AM
    Hello, I m from kenya.I like Irio (Mashed Peas and Potato Mix) ... Githeri (Beans and Corn) ... Kenyan Pilau (Spiced Rice), along with that i like...
    9 replies | 2048 view(s)
  • Gibson75's Avatar
    05-20-2018, 03:51 PM
    Gibson75 replied to a thread Atypical CF in Newly Diagnosed
    Thank you for your reply Ratatosk. Yes I have heard of some CF's that have a positive sweat test and have very little symptoms when they are young....
    2 replies | 451 view(s)
  • veggiebin's Avatar
    05-20-2018, 11:49 AM
    I was reading a post on DIOS from April and your comments on pancreatitis/mucus barrier. I find your posts informative, so I thought Iíd ask your...
  • Alorance9571's Avatar
    05-19-2018, 02:22 PM
    Alorance9571 replied to a thread Cipro and Tendinitis in Adults
    Thanks Kenna, Thatís what I was thinking. My physical therapist is wonderful. I start Cayston next week so as long as my reaction to that isnít...
    2 replies | 526 view(s)
  • kenna2's Avatar
    05-19-2018, 01:32 PM
    kenna2 replied to a thread Cipro and Tendinitis in Adults
    I sometimes get it in my shoulder from doing IV meds and yes it's worth it. Strength training/ physical therapy will help. The important thing is to...
    2 replies | 526 view(s)
  • Alorance9571's Avatar
    05-19-2018, 01:09 PM
    So Iíve finished Cipro for my first pseudomonas Infection and am left with Tendinitis in my knees. This started when I first started taking the...
    2 replies | 526 view(s)
  • Donna Thomas's Avatar
    05-19-2018, 01:42 AM
    Flutterby FUNdraisers for cystic fibrosis are embarking on a family fun day. Run, ride or walk. A 7.7k route along side the river Taff. The midway...
    0 replies | 21 view(s)
  • Imogene's Avatar
    05-18-2018, 07:02 PM
    This survey is only available to primary Caregivers of children with Cystic Fibrosis aged 12-24 months old and eligible for the medication...
    0 replies | 457 view(s)
  • fel's Avatar
    05-16-2018, 12:09 PM
    fel replied to a thread Adrenal insufficiency in Adults
    Update: We figured out the cause of the adrenal insufficiency/low cortisol. It was the budesenide (steroid) in his sinus rinses, used to treat...
    8 replies | 4101 view(s)
  • fel's Avatar
    05-16-2018, 12:00 PM
    fel replied to a thread 13-25 year olds - we need you! in Adults
    Hi, There is a thriving reddit/discord community for CFers -- you may want to tap into them for your study. ...
    1 replies | 251 view(s)
  • stylecomfy's Avatar
    05-14-2018, 04:11 PM
    stylecomfy replied to a thread CF related diabetes in Adults
    Hi Julie, I do think the sliding scale is for more severe CFRD meaning they need long acting insulin to cover their baseline and then the short...
    10 replies | 1809 view(s)
  • julie61554's Avatar
    05-14-2018, 10:22 AM
    julie61554 replied to a thread CF related diabetes in Adults
    Thanks for the information. My doctor never mentioned anything to me about a sliding scale. I go see her next week so hopefully I can get answers...
    10 replies | 1809 view(s)
  • kenna2's Avatar
    05-12-2018, 10:01 PM
    kenna2 replied to a thread CF related diabetes in Adults
    It depends on the person. The insulin you do when you eat (short acting) is for the carbs you eat to cover only. You should have a sliding scale for...
    10 replies | 1809 view(s)
  • julie61554's Avatar
    05-12-2018, 12:23 PM
    julie61554 replied to a thread CF related diabetes in Adults
    I have another question if anyone knows the answer.....I went ahead and used the insulin for breakfast this morning as the doctor had recommended (I...
    10 replies | 1809 view(s)
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