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  • LittleLab4CF's Avatar
    Today, 03:21 PM
    LittleLab4CF replied to a thread Constipation in Adults
    This is just a thought, based on what I have been trying to resolve for the last two years and possibly three or four years. What is the status of...
    4 replies | 1604 view(s)
  • coico's Avatar
    Today, 06:31 AM
    coico replied to a thread Happy Birthday to flyfly in Birthdays
    A gift card is perfect for birthday greeting. Printing pvc card types of Coico Student card printing Smart card printing Pvc card printing
    1 replies | 1559 view(s)
  • Clear Sky's Avatar
    10-09-2019, 10:29 AM
    Hi, my name is Sky. I have cystic fibrosis. I was a late diagnosis at the age of 6, but I have been doing well. My health has deteriorated recently,...
    0 replies | 209 view(s)
  • Ratatosk's Avatar
    10-04-2019, 11:10 PM
    Ratatosk replied to a thread Constipation in Adults
    It's just been such an incredibly long time since we've had to deal with something like this. Still stooling, albeit harder ones and stomach...
    4 replies | 1604 view(s)
  • Rebjane's Avatar
    10-04-2019, 02:37 PM
    Rebjane replied to a thread Constipation in Adults
    We use one cap of Miralax twice a day every day. One of the doses I mix with Gatorade zero. We also do Prune juice mixed with diet pepsi, every...
    4 replies | 1604 view(s)
  • kenna2's Avatar
    10-04-2019, 10:45 AM
    kenna2 replied to a thread Constipation in Adults
    Miralax can help, and I know a lot of people do about about 2 cap fulls twice a day. However, you have to be really careful with it. If the powder...
    4 replies | 1604 view(s)
  • Ratatosk's Avatar
    10-04-2019, 06:37 AM
    Ratatosk started a thread Constipation in Adults
    DS had a stomach bug last weekend and when this usually happened he'd have very loose stools in the weeks that followed along with decreased appetite...
    4 replies | 1604 view(s)
  • JustaCFmom's Avatar
    10-03-2019, 01:43 PM
    JustaCFmom posted a visitor message on jricci's profile
    Hi, I would love to get that link to the webinar about kalydeco and pregnancy. My daughter is expecting now and we would appreciate any...
  • RichardJansson's Avatar
    09-30-2019, 07:34 PM
    I do not know, how they do so. But it is really great to make sure in the current blog mood improving. It is funny and joyful.
    2 replies | 8596 view(s)
  • RichardJansson's Avatar
    09-29-2019, 02:28 PM
    Well, your situation is rather strange. But it is necessary to check everything correctly.
    3 replies | 5854 view(s)
  • RichardJansson's Avatar
    09-29-2019, 02:27 PM
    I am not sure that it is the one we are looking for. As it is rather specific, as for me.
    1 replies | 2059 view(s)
  • Chipper's Avatar
    09-29-2019, 10:06 AM
    I want to indoor cycle and neb at the same time. Does the Alb/Saline/Tobi travel effectively through the CPAP tube to the face? Needs to be...
    0 replies | 1107 view(s)
  • gertiosl's Avatar
    09-25-2019, 01:48 AM
    gertiosl replied to a thread Bad Breath in Adults
    It's common even with people who don't have CF. Try brushing your tongue thoroughly before using mouthwash. Perhaps invest in some tic tacs or...
    34 replies | 11552 view(s)
  • gertiosl's Avatar
    09-25-2019, 01:47 AM
    I'm a solar engineer, degree in Mechanical Engineering. I thought similarly when I was in high school, thinking I shouldn't pursue anything...
    19 replies | 11884 view(s)
  • gertiosl's Avatar
    09-25-2019, 01:47 AM
    gertiosl replied to a thread Air Purifiers (HEPA) in Adults
    A steam cleaner is a device for removing dirt from surfaces using hot steam. What is the principle of operation of this device, the differences...
    6 replies | 1884 view(s)
  • jricci's Avatar
    09-22-2019, 10:48 PM
    I just sent the webinar link to your Private Messages. Let me know if you didn't receive it. I frequently have problems with private messages not...
    2 replies | 1230 view(s)
  • jricci's Avatar
    09-22-2019, 10:37 PM
    The Cystic Fibrosis Reproductive and Sexual Health Collaborative (CFReSHC) hosted a webinar by Dr. Jennifer Taylor-Cousar on CFTR modulators and your...
    2 replies | 1230 view(s)
  • Lynnfield mom's Avatar
    09-20-2019, 02:17 PM
    Just an FYI, there is something called non-CF bronchiecetaisis (sp).You could have many symptoms similar to CF and not have CF. Regarding those who...
    12 replies | 7095 view(s)
  • Lynnfield mom's Avatar
    09-20-2019, 02:06 PM
    I know 2 people who had liver transplants. One a few years before she gotlungs, the other got her liver as a teen and now is undergoing a work up for...
    1 replies | 1219 view(s)
  • lbonacas's Avatar
    09-15-2019, 08:31 AM
    Hi, I was just wondering if anyone has taken Kalydeco throughout their whole pregnancy, I wasn't given concrete evidence that the drug isn't harmful...
    2 replies | 1230 view(s)
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