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  • lbonacas's Avatar
    Today, 08:31 AM
    Hi, I was just wondering if anyone has taken Kalydeco throughout their whole pregnancy, I wasn't given concrete evidence that the drug isn't harmful...
    0 replies | 35 view(s)
  • Larryfub's Avatar
    09-12-2019, 05:42 AM
    Hey everyone nice forum :)
    0 replies | 69 view(s)
  • Donaldmax's Avatar
    09-12-2019, 02:05 AM
    Donaldmax replied to a thread Relationship issues in Families
    i have personally experience about the night coughing my wife and my 3 year old baby very disturbed. but after that one of my friend give me some of...
    3 replies | 1169 view(s)
  • jfarel's Avatar
    09-06-2019, 09:54 AM
    jfarel replied to a thread coming up on 5 years in Transplants
    I celebrated 9 years this past June. Am doing well!
    5 replies | 2538 view(s)
  • Ratatosk's Avatar
    09-06-2019, 09:28 AM
    Ratatosk replied to a thread Relationship issues in Families
    I know this is spendy.... $200+ but Bose makes sleep buds for people who live with loud snorers. Not sure if they would do the trick, if it's the...
    3 replies | 1169 view(s)
  • kenna2's Avatar
    09-05-2019, 08:26 PM
    kenna2 replied to a thread Relationship issues in Families
    I have a Bed Wedge that I sleep on that helps when I cough. It's Brookstone brand (https://www.brookstone.com/pd/4-in-1-bed-wedge-pillow/633859p.html...
    3 replies | 1169 view(s)
  • K00p5's Avatar
    09-05-2019, 07:10 PM
    K00p5 started a thread Relationship issues in Families
    Hello, first time posting here. Not sure if this is the right room. Anyways, my wife and I are recently married, we love each other dearly and she is...
    3 replies | 1169 view(s)
  • Ratatosk's Avatar
    09-05-2019, 09:12 AM
    Got the replacement vest just in time. Vest was stopping several times during treatment and I'd have to unplug it. Must've been having issues for a...
    1 replies | 1260 view(s)
  • erock77's Avatar
    09-04-2019, 03:52 PM
    I came on here looking for more solutions too since I'm relapsing today, but have been pretty good for a while. I'm pasting some tips I posted...
    5 replies | 830 view(s)
  • fel's Avatar
    09-03-2019, 03:18 PM
    If anyone has a used Electro-flo, as the title says I am looking for one. It is not covered by my insurance. Thanks much!
    0 replies | 256 view(s)
  • Ratatosk's Avatar
    09-03-2019, 02:23 PM
    This past weekend, DS' vest has once again started sounding different and been throwing error codes about 5 minutes before treatment time should...
    1 replies | 1260 view(s)
  • Sonja35's Avatar
    09-02-2019, 10:12 AM
    Be careful not to rush into embolization after embolization cuz as you may or may not know, every time they do an embolization... it burns...
    5 replies | 830 view(s)
  • Meggy!'s Avatar
    09-01-2019, 08:10 PM
    I'm currently an administrative assistant, but am looking for other jobs. Possibly staying an administrative assistant but changing company's.
    18 replies | 11033 view(s)
  • Resta's Avatar
    08-30-2019, 05:36 AM
    Resta replied to a thread Walk for Health in Global HealthCare
    I walk for more than three hours per day --- sometimes four. My average steps are 20,000 per day. Is this healthy? It's about the only form of...
    5 replies | 4755 view(s)
  • blindhearted's Avatar
    08-29-2019, 05:42 PM
    I graduated college with 2 associates degrees, Information Systems and Internet Technology in 2004. Most jobs required 1-3 years of prior experience...
    18 replies | 11033 view(s)
  • Ratatosk's Avatar
    08-29-2019, 01:32 PM
    Ratatosk replied to a thread Update - ALT Results in Adults
    Interesting... They indicated they (vertex) didn't consider the elevated liver enzymes (ALT) a concern or reportable until they reached 3 times the...
    2 replies | 188 view(s)
  • kenna2's Avatar
    08-29-2019, 11:44 AM
    kenna2 replied to a thread Update - ALT Results in Adults
    So just wanted to give you an FYI. I take Symdeko and actigal too. I and some other CFers have had increased liver test being on it. We now have been...
    2 replies | 188 view(s)
  • Ratatosk's Avatar
    08-29-2019, 09:19 AM
    Ratatosk started a thread Update - ALT Results in Adults
    DS has been on Symdeko for about a year and last winter his ALT was elevated. While he was on Orkambi, he had liver function tests every few months...
    2 replies | 188 view(s)
  • Imogene's Avatar
    08-20-2019, 02:34 PM
    http://cysticfibrosis.com/suggestions-help-manage-cystic-fibrosis-college/ Aimee Laurence
    0 replies | 1226 view(s)
  • kenna2's Avatar
    08-20-2019, 06:03 AM
    I do have liver disease too and am being evaluated for a liver transplant. I don't have issues with clotting so maybe that is a big determining...
    5 replies | 830 view(s)
  • ljberk's Avatar
    08-20-2019, 01:05 AM
    Thanks Kenna2. I think this might really work for him. About a year back I had heard about this med and told my son. He brought it up to his...
    5 replies | 830 view(s)
  • kenna2's Avatar
    08-19-2019, 08:19 PM
    So I am in a gray area when it comes to hemoptysis, I don't bleed enough for embolization yet, but still have frequent issues with it. I was...
    5 replies | 830 view(s)
  • ljberk's Avatar
    08-18-2019, 11:51 AM
    Hello All - I'm a mom to a 29y/o w/DD508. He is living his life with more than a few challenges, but living nonetheless. He has pancreatic...
    5 replies | 830 view(s)
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