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  • carolinen's Avatar
    Yesterday, 02:28 PM
    carolinen replied to a thread Newly Cultured NTM/MAC in Adults
    So sorry you have had this diagnosis - but at least you now know why you feel so bad, and can start making a plan with your doctors to treat it....
    2 replies | 429 view(s)
  • jcwise62's Avatar
    Yesterday, 02:19 PM
    jcwise62 replied to a thread Sauna and CF in Adults
    My son, a senior in HS this year and varsity football player, takes a salt tablet every day before he heads off for practice and one at night before...
    5 replies | 503 view(s)
  • Bwiles's Avatar
    Yesterday, 01:44 PM
    Bwiles replied to a thread feeding tubes in Nutrition
    Hi Jillybeans, My 23 y/o daughter just got a feeding tube. Like others, we fought the idea of doing this for several years. She is now looking at...
    2 replies | 103 view(s)
  • tharris's Avatar
    Yesterday, 01:27 PM
    tharris replied to a thread feeding tubes in Nutrition
    Hello jillybeans. I feel your devastation. My son, (20 years old 6' tall - 145 pounds) also 'off the charts' (in the wrong direction). We fought...
    2 replies | 103 view(s)
  • Ratatosk's Avatar
    Yesterday, 01:26 PM
    I agree. I used the talking points from the CFF letter, added individual info and tada, two faxes sent. Especially easy to use the voice to text...
    4 replies | 315 view(s)
  • Ratatosk's Avatar
    Yesterday, 01:22 PM
    Ratatosk replied to a thread Sauna and CF in Adults
    With DS, his doctor was never concerned with salt intake as long as he also had plenty to drink. His daycare kept the kids very active -- they...
    5 replies | 503 view(s)
  • triples15's Avatar
    Yesterday, 09:58 AM
    Holy cow Ratatosk, that.was.awesome!!! Thanks so much for posting it. Within a couple minutes they had faxed my letter to both of my...
    4 replies | 315 view(s)
  • stylecomfy's Avatar
    Yesterday, 09:09 AM
    stylecomfy replied to a thread Sauna and CF in Adults
    Thanks for the input. I was wondering about a more exact guideline for salt replacement in CF? What do your clinics commonly tell you? I've generally...
    5 replies | 503 view(s)
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