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sorry to hear that, when the subject came up my doctor had no problem with me using marijuana provided I don't smoke it, is your doctor a resident or...

Pulmosal is 7% salt, (sodium chloride) solution for nebulizing. I am using it as are many if not most CFers as part of an airway clearance protocol....

My husband (53 years old) has been on Kalydeco since its release in Feb. 2012 (He's G551D). He has not been given a sweat test at all, but wish he...

Thanks for all the responses! I was informed about the liver levels needing to be checked q3months. Also have an eye exam scheduled to check for...

Jeannie85: definitely do sweat tests before and after starting ivacaftor (4-8 weeks after). You should also do blood work to get baseline values for...

The strategy is to have one triple for anyone with df508 or where \known benefit of Or\kambi and one for those with 551 and the second a het-min. ...

Incredible results! Does anyone know if they also intend to study the triple combo in people with gating and residual function mutations, plus one...

I've been swimming in public pools my entire life! From club swimming through High School and now at 41 I try and hit the pool at least 4 times a...

The study tested CFers with one copy of df508 and one copy of another gene not expected to benefit from Orkambi/next generation because it has...

Thanks everyone for your replies! After seeing my doctor last week, getting a CT scan, extensive PFT's, etc...we have determined it's asthma. I'm...

What is a minimal function mutation?

Yes happy tears here too. There are 2 more drugs in the ring still and they are both BETTER in vitro. And hopefully don't have the same ris\k re...

Thanks for sharing Aboveallislove! These are incredible results! Happy tears:) Summary of Results: In the Phase 2 clinical trial of VX-440...

Thank you so much everyone. I spoke to his endocrinologist, and he feels that If an x Ray is done, and there is no sign of disease in his jaw, then...

My son is not on that med but when his impacted wisdom teeth needed to be extracted he ended up having to get it done at the hospital. The oral...

Jeannie85: Talk with her doctors, but I'd suggest doing a sweat test before and after starting it. It's a quantitative measure of improvement that...

Hello to all Our little girl will be 3 in December and she is doing just brilliant. So far there have been no symptoms at all. We both are...

we discussed it at length before I was ever given any paperwork to sign, I am just waiting to see if I get approved, my lung function isn't getting...

My gene was on the recently approved list for Kalydeco! I started a week ago. It's working so well! Within a day, I had significant reduction in...

Hi everyone. My daughter has D110H and will soon be starting kalydeco. She is 4 and has never been on antibiotics or been hospitalized. She only...

How are you feeling? Sometimes even with an inhaled steroid my daughter gets tight and inflamed. We sometimes have to use a steroid burst and or...

Hello Jshet, How awful for you and your son! I'm sorry to hear he is in such an awful situation. My son (also Autistic) would be very upset if...

I'm sorry you're caught up in a medical dilemma that is not that common. It's generally pretty extreme to be fighting onset of osteoporosis and...