Activity Stream - CysticFibrosis.com

Sort By	Time	Show
Recent Recent Popular Popular	Anytime Anytime Last 24 Hours Last 24 Hours Last 7 Days Last 7 Days Last 30 Days Last 30 Days	All All Photos Photos Forum Forums

Older Activity
Today, 04:18 PM

viraco posted a visitor message on viraco's profile

داکت اسپلیت کولر گازی

see more
Today, 04:12 PM

Ratatosk replied to a thread Sauna and CF in Adults

Definitely sounds like dehydration. I know some athletes take Salt Tablets --- I order the Salt Stick brand for my husband & cousin (No CF) during...

see more

2 replies | 188 view(s)
Today, 03:16 PM

Golubicc replied to a thread Sauna and CF in Adults

I would think with headache you are definitely dehydrated. Be careful.

see more

2 replies | 188 view(s)
Today, 12:31 PM

stylecomfy started a thread Sauna and CF in Adults

Hi all, anyone with Sauna-ing experience? I recently started looking into Saunas for overall health benefits, such as improved circulation,...

see more

2 replies | 188 view(s)
Today, 11:02 AM

Ratatosk replied to a thread Another Attempt at Health care Bill does not protect CF Pateints in Adults

Got the following phone script to use from our CFF Rep. Graham-Cassidy Bill Phone Script Call (202)517-8215 Hello, my name is and I...

see more

1 replies | 94 view(s)
Today, 05:47 AM

Rebjane started a thread Another Attempt at Health care Bill does not protect CF Pateints in Adults

https://www.cff.org/About-Us/Media-Center/Press-Releases/Sixteen-Patient-and-Provider-Groups-Oppose-Graham-Cassidy-Bill/?linkId=42392696

see more

1 replies | 94 view(s)
Yesterday, 12:36 AM

primarymedical posted a visitor message on primarymedical's profile

Primary Medical Group provides medical house calls in Las Vegas for homebound patients. Our house call doctors are experienced in urgent, acute,...

see more
09-17-2017, 08:19 AM

mom2two replied to a thread Should I send my 18mth old to a preschool or keep him home? in Families

I know that my youngest child, at 22 months, was begging us to go to preschool from 9-noon. She'd watched her older sister go to school, been there...

see more

15 replies | 4680 view(s)
09-15-2017, 09:50 PM

delsonno9 replied to a thread Weight Lifting in Exercise & Fitness

My daughter started fitness/ bikini competition this year in May The Europa in Orlando, Fl was her first. Prior to that she did nine years of Travel...

see more

9 replies | 2798 view(s)
09-15-2017, 02:22 PM

CFSanDiego replied to a thread CF and Lyme Disease in Adults

Hi. My daughter (10) is being treated currently and she has cf as well. You can email me at [email protected] if you wish.

see more

1 replies | 659 view(s)
09-14-2017, 04:41 PM

DNelson88 started a thread CF and Lyme Disease in Adults

Hi all. My adult son (age 29) was just diagnosed with Lyme disease. He is having trouble tolerating the doxycycline. Anyone else with CF have/had...

see more

1 replies | 659 view(s)
09-13-2017, 10:03 AM

Printer replied to a thread Sweat test result: 58 in Newly Diagnosed

The sweat test that is given outside of a CF Center is only a "scanning sweat test". That is the reason that you were told that your CF Center will...

see more

2 replies | 460 view(s)
09-13-2017, 09:22 AM

kyeev replied to a thread Knowing when it's time? in Transplants

Oh I see. Well hopefully you will be listed next month. No, I haven't had my MHC antigens looked at yet. Still at the stage of getting all my CT...

see more

5 replies | 1335 view(s)
09-13-2017, 08:05 AM

Lynnfield mom replied to a thread My Alex in Remembering

Heather, I cannot imagine your grief. I am so sorry for your loss. About Alex's meds...the only thing that needs really special attention is...

see more

3 replies | 642 view(s)
09-13-2017, 07:35 AM

mom2two replied to a thread Knowing when it's time? in Transplants

Kyeev, I am not listed, yet. You have to do a month of rehab at Duke and educational classes. Since the initial testing I did was more than a year...

see more

5 replies | 1335 view(s)
09-12-2017, 07:54 PM

Golubicc replied to a thread My Alex in Remembering

Deepest condolences on your loss. People in the hurricane areas are collecting CF supplies and medications. Maybe contact a cf center in Houston and...

see more

3 replies | 642 view(s)
09-12-2017, 05:59 PM

treasuregoddess replied to a thread Adrenal insufficiency in Adults

fel - my son developed it around 15 years old. We really didn't use a lot of steroids until then, so not sure if it was caused by the steroid use or...

see more

7 replies | 1468 view(s)
09-12-2017, 11:14 AM

stylecomfy replied to a thread My Alex in Remembering

Dear Heather, we are so very sorry for your loss. Our thoughts are with you and your family. I'm not familiar with the disposal/donation...

see more

3 replies | 642 view(s)
09-12-2017, 09:59 AM

kyeev replied to a thread Knowing when it's time? in Transplants

Wow. I can't actually believe they have only listed you now, with you being on 4L of Oxygen at rest. That scares me to be honest. It's definitely...

see more

5 replies | 1335 view(s)
09-11-2017, 04:25 PM

mom2two replied to a thread Knowing when it's time? in Transplants

Hi Kyeev, Sound similar to me. Duke actually just gave me the go ahead a few weeks ago for relocation and transplant, and here I sit in Durham,...

see more

5 replies | 1335 view(s)
09-11-2017, 01:25 PM

Ratatosk replied to a thread Sweat test result: 58 in Newly Diagnosed

Sweat tests can fluctuate based on who conducts the testing. In the states it's recommended a test be done at an accredited CF facility. In my...

see more

2 replies | 460 view(s)
09-11-2017, 11:50 AM

Jackoc started a thread Sweat test result: 58 in Newly Diagnosed

Hi, I'm 23 years old and I've had nasal polyps for a couple of years and get a chest infection every now and again. I was recently sent for a sweat...

see more

2 replies | 460 view(s)
09-10-2017, 10:20 PM

fel replied to a thread Adrenal insufficiency in Adults

Treasuregoddess -- was your son born with AI or did it develop from therapies with steroids? We are having some difficulty determining when he needs...

see more

7 replies | 1468 view(s)
09-10-2017, 04:41 PM

cpm777 replied to a thread How's the healthcare and coverage in Colorado? in Adults

hey guys, what are you looking to know? my name is Chris, 34yrs old, just moved from Denver to NC, been living in Denver the past 5 yrs. I went to...

see more

5 replies | 841 view(s)
09-10-2017, 01:40 PM

heatherbrown started a thread My Alex in Remembering

I just lost my CF son in an accidental shooting. I can't put into words yet, how I feel. I miss him intensely and endlessly. I am here...

see more

3 replies | 642 view(s)
09-09-2017, 09:21 PM

jaimers replied to a thread Moving to Colorado- Between Denver and the Springs possibly-Short term rentals? in Adults

i visited a friend in CO Springs a couple of years ago (her hubby was stationed there for the army) and had some difficulty with the altitude. I...

see more

4 replies | 493 view(s)
09-09-2017, 01:41 PM

LunaFaith posted a visitor message on CFwarrior86's profile

yes this is my mutation as well

see more
09-08-2017, 03:21 PM

ToriMom replied to a thread Newly Cultured NTM/MAC in Adults

Hi friend, NTM Is Non-Tuberculosis Mycobacterium. My daughter has this in her cultures too, and it's hard to treat. There are wonderful...

see more

1 replies | 360 view(s)
09-08-2017, 01:05 AM

CFwarrior86 started a thread Newly Cultured NTM/MAC in Adults

I got a call from my CF doctor yesterday. She asked how ive been feeling as ive had a drop in my 02 saturation over the past week or two (from 99% to...

see more

1 replies | 360 view(s)