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23 & me only tests for the most common CF mutations -- I think they test for 32...? And there are over 1600 mutations for CF. So it's hard to say...

I was so happy to hear this wonderful news last week!! 900 more people will hopefully be breathing easier soon. For those with clinical...

Thank you! I appreciate your helpful information in regards to polyps!

Ladybird- so good to hear from you! It's been awhile. I'll let you know what I find out about this whole EAP issue. I've been in contact with...

Hi susied! Your results are not considered "negative" unfortunately. They are considered "borderline/indeterminate". She may have CF and she may...

Good Afternoon! Her results were 53 for the sweat test. Her ENT- who ordered the test- was not in the office today. He is calling me tomorrow to go...

Thanks for the great response...We have 15 so far! So half completed. If you send in to be part of this study...Thank you! Looking for 15 more.......

Thanks JRicci and Stephen. You have both helped me so much and I am so grateful. Stephen alerted me to the possibility of getting Kalydeco and...

Thanks. I have CF and drink water as described above. Never had a problem. Not sure why I would. CONFUSED.

Yes - good luck! And do keep us posted. You're headed to a good facility and I'm sure lots of our members - myself included - would love to hear...

Good luck tomorrow. Whether cf or not some good suggestions from others here. I'll just add a thought. Keeping sinuses as clean as possible is...

CRMS is essentially a gray diagnosis given when not all criteria is met for a CF diagnosis yet there is cause to still monitor. Most of the time...

what is CRMS? My ND told me to pour tap water into an open container pitcher and let stand 24 hours. this is how the chlorine leaves the water. i do...

The eflow question is a good one. I think it is expensive, about $1000...As well as do you need one aerosol head for each medication? I guess I am...

Hi Guys, I just thought I'd offer up a suggestion for a product that I came a crossed a few years ago that I've found to be a big help. I usually...

For some. Still not approved for every one it works for.

Hi Rebjane, I know this is not actually answering your question, but is there any reason you don't use an eFlow nebulizer instead of a compressor at...

Thank you so much for your suggestions and sharing of information. We go to Hopkins tomorrow for the sweat test. I will let you know once we get...

We ran into similar issues with our Pari Vios and I was thinking maybe it's outlived it's usefulness. I use disposable sidestream nebs if he's not on...

This is great news about your mutation and Kalydeco. Considering that Orkambi is effective for ∆F508 and Orkambi is a combination of a CFTR...

Snailj12, Let me add to what "emason" said. If you have any productive cough where you bring up thick mucus you should look into getting...